Have you ever heard of FOXG1 syndrome? It’s a chromosomal deficiency characterized by small head size, agenesis of corpus callosum (ACC), seizures, severe developmental delays, and lack of mobility and speech.
If your answer is no, you are likely not alone. After all, this rare syndrome was only identified in 2009 and there are only about 120 known cases in the world. However, November is National FOXG1 Awareness Month and Nik and Christy Feist of Waconia are doing their part to help raise awareness about FOXG1 by sharing their family’s story.
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